I was released from Baylor/All Saints the afternoon of Thursday the 11th and it is good to be home. They would not let me leave until I was fever-free for 24 hours. I must admit I was beginning to think of escape routes if they had not released me because I was very tired of the hospital. The nurses and staff were wonderful but six days is a long time and I had other things I wanted to do. I feel great and dialysis went well this morning.
As A.G. said, the biopsy showed I do not have leukemia and we are thankful for that because one form of cancer is enough to deal with at a time. Add the amyloidosis on top of it all and my plate is pretty full. It did show that the stem cells are there but just taking longer to get to work. It showed I had chemo and have had a great deal of trauma to contend with. Nothing we did not already know other than the absence of leukemia and that is a good thing.
Tuesday, August 9, 2005
Sunday, August 7, 2005
La Donna is currently at Baylor/All Saint’s in Fort Worth. Her temperature went up to 103.5° Friday night. As it turns out she had a severe kidney infection.
On Monday after dialysis she had a strange feeling when she would go to the bathroom, she got to feeling better and dialysis went well on Wednesday. Thursday morning was a good morning; she decided to work in the yard. About noon both kidneys felt like they had been kicked with a steel-toed boot. She spent the next several hours on the sofa resting.
Friday was dialysis again. When she got there her temperature was about 100.7°. During dialysis they constantly monitor your blood pressure, it was fine. When dialysis is complete, they take another sitting blood pressure and a standing blood pressure. During the standing blood pressure, she became extremely light headed and there was a swishing noise in her ears. They immediately sat her down and put her in a reclining position, because her blood pressure at that time was 70 over 30. Dialysis centers will not allow you to leave if you are driving yourself until your blood pressure registers at least 100, if someone else is driving you it has to register 90 or above.
The rest of the day she became progressively weaker and her condition worsened. About 8:00 PM she knew there were real problems, when Arthur checked her temperature it was 103. Arthur called the dialysis center and they told him to get her to the hospital. When she got to the Emergency Room at Campbell, her temperature was 103.5°. She had bacteria in her kidneys and she had an extreme kidney infection. She was given 3 antibiotics in the ER and sent by ambulance to Baylor/All Saint’s in Fort Worth, arriving at about 11:30 PM.
She was administered another antibiotic and because her hemoglobin was so low, she received two units of blood. Her temperature ranged between 100.5° and 103.1°. They could not get it below 100. About noon Saturday she began feeling better and has progressively improved. Sunday her platelets were down, she received platelets and they did an abdominal CAT scan. She will be in the hospital tomorrow and will have dialysis and two more units of blood.
On Monday after dialysis she had a strange feeling when she would go to the bathroom, she got to feeling better and dialysis went well on Wednesday. Thursday morning was a good morning; she decided to work in the yard. About noon both kidneys felt like they had been kicked with a steel-toed boot. She spent the next several hours on the sofa resting.
Friday was dialysis again. When she got there her temperature was about 100.7°. During dialysis they constantly monitor your blood pressure, it was fine. When dialysis is complete, they take another sitting blood pressure and a standing blood pressure. During the standing blood pressure, she became extremely light headed and there was a swishing noise in her ears. They immediately sat her down and put her in a reclining position, because her blood pressure at that time was 70 over 30. Dialysis centers will not allow you to leave if you are driving yourself until your blood pressure registers at least 100, if someone else is driving you it has to register 90 or above.
The rest of the day she became progressively weaker and her condition worsened. About 8:00 PM she knew there were real problems, when Arthur checked her temperature it was 103. Arthur called the dialysis center and they told him to get her to the hospital. When she got to the Emergency Room at Campbell, her temperature was 103.5°. She had bacteria in her kidneys and she had an extreme kidney infection. She was given 3 antibiotics in the ER and sent by ambulance to Baylor/All Saint’s in Fort Worth, arriving at about 11:30 PM.
She was administered another antibiotic and because her hemoglobin was so low, she received two units of blood. Her temperature ranged between 100.5° and 103.1°. They could not get it below 100. About noon Saturday she began feeling better and has progressively improved. Sunday her platelets were down, she received platelets and they did an abdominal CAT scan. She will be in the hospital tomorrow and will have dialysis and two more units of blood.
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