Wednesday, June 18, 2008
Not much is different and I am continuing to function daily and enjoy much of my time. Arthur and I went to the Amyloidosis Support/Texas Area meeting last Saturday. Dr. Francis Buadi from Mayo/Rochester, Minnesota was the guest speaker. He is a specialist working with amyloidosis and was very interesting and informative. He gave us information about the research and testing taking place at Mayo and other institutions for amyloidosis. When I asked about my situation, he said none of the medications would be given to me because of my low blood/platelet numbers. I really knew that was probably the answer but thought I would ask anyway. I have so many problems that no one will chance testing on me. Some testing might be effective on me but it could make some of my other problems worse. So it is just stay the course.
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