Really not much to tell just the same ole thing. I am getting platelets in the morning. Got blood last week and the hemoglobin was 9.9 so they are not giving me blood tomorrow. I am sure it is better to have the platelets and blood transfused on different days but it limits my time off from anything medical.

The dialysis has been most difficult this week with my blood pressure bottoming out. It took 30 minutes this morning before it came up enough for them to let me go. The top number has to be 100 or more before I can leave the center and at one time mine was 68/48. It finally registered 100/54 and they let me go. I just came home and rested until I could get my land legs. Susan, the lady who works for me, was here today when I got home and she is great. She always makes sure I am comfortable and have something to drink. I am fine this afternoon if I sit or lie down but if I stand or try to walk, I become very dizzy and do not make it very far.

Last week was very difficult but this week is much better. It remains an up and down ride but when I feel good, it is great. A. G. told me when I say I feel good is like most people’s worst day but really there are days when I almost feel normal. I am very thankful for those days and can really get a lot of things done and enjoy that time.

I have reordered the Exjade, the iron binder, because it seems to be doing some good by bringing my ferritin level down. Other than that, everything is about the same so there is not much to tell but just letting you know things are pretty level at this time.

The infection has been taken care of because Levaquin is like a miracle drug for me and has brought me through several struggles. The bleeding has also stopped and I am back to normal, well normal for me. I am still taking the iron binder Exjade and hope it is having a good effect on me. Blood was taken last week and is being checked to see what the iron numbers are and I should have those results on Monday.

Things are pretty stable at this time.