Thursday, July 16, 2009

Well, I said I would let you all know about today.We went to see Dr. Page and I am not a candidate for any trials because of the renal failure. I would be dismissed from any trial. If the Velcade trials are a success and Dr. Page feels they will be for WM, then I might be a candidate to take it under very controlled conditions. I remembered the Velcade exacerbates Peripheral Neuropathy and he said that it does. Of course I have PN and that is another reason to be careful. He said I am very stable at the time and as long as we can keep it that way, I can lead a fairly normal life. He said I have too many problems to think about being in a trial and I also asked him about a kidney transplant. I did not think I could ever be a candidate for one and he said that I am not. Here again because of too many problems. My blood counts are all too low to ever undergo surgery. My Hgb, white cell count and platelets are off the low end of the scale and any surgery would put too much pressure on my system and complications and infections would be a huge factor. He did not feel I would survive the surgery and if I did, the aftermath would be worse than dealing with what I have now. I respect Dr. Page and have always ask him for the truth and not to sugarcoat anything. He is a class guy and I will always do what he suggests. He feels we are on a good path at the time and we need to stay with what we are doing now. That is fine with me and I enjoy the good days and there are many more good days than bad.