I realize I have not written in my blog for a year and will try to do better. We went to a meeting of the Amyloidosis Support Group in Dallas and I got some interesting news. The doctor from Mayo/Rochester, Dr. Shaji Kumar, was talking about the progress made lately in Amyloidosis research. He also works with Waldenstrom patients...go figure. He was talking about a treatment that is not for everyone with Amyloidosis but it is helping slow down the progress of the diseases of the combination of WM and Amy. It is more against the Waldenstrom’s. I asked him since I have both am I a candidate for Velcade treatment and his reply was, "yes" so I am contacting my oncologist tomorrow for an appointment. I was to see him next Monday but if I can get in tomorrow, I want to see about this. This is the first hopeful sign I have had since the stem cell transplant and we all know that went less that perfect. It did bring my WM protein numbers down and that was a good thing but that was all it did and not what the doctors had hoped it would do. We will see, I am anxious to talk to Dr. Page. I may not have quoted Dr. Kumar word for word but he gave me hope that someday there will be a cure for Amyloidosis and that they are doing their best to keep patients alive and active until that day comes.