Things have been pretty much the same so I have not been diligent in writing in my blog. But the last couple of weeks, I have not felt well and have experienced a sharp pain in my chest in the area where the catheter ends. This pain radiates into the lower spine area and even makes my lower lip tingle. Sounds silly but that describes it. My nephrologist at dialysis, Dr. Shori, wanted me to go back to my cardiologist, Dr. Mott, to check my heart. I had not seen him since 2004 because of my other problems; he said they overshadowed everything else. I saw him Wednesday and he did an ekg and could tell there had been some changes since the last time but he was surprised there had not been more changes because of all that had taken place. I go in next Thursday for more testing but he said there would be very little he could do for me even if I came into his office having a heart attack because of my low platelet count and I would be too great a risk. I know that may seem a bit harsh but I appreciate doctors who are honest and straightforward with me. All he will be able to do is try medications. He has started me on Isosorbide to be taken on the days I do not have dialysis. Dr. Shori has started me on Nexium so we shall see if there is any change.

I went to Dr. Fenves, my nephrologist in Dallas, Tuesday and he was pretty impressed with most of my numbers other than the ferritin level. It is still at such a high level there is a great chance that it will start to damage my heart and liver.

Seems I am like a dog chasing their tail I just go round and round and things just keep going down hill. Thank goodness for my family and friends because they make all things bearable.