Thursday, June 30, 2005
It has been awhile since I have made an entry but not much has changed. The stem cells still are not working and I have to get platelets and blood each week. By the end of the week, the platelet numbers are between 11,000 and 13,000 and my hemoglobin numbers are between 6.7 and 8.0. While I was in the hospital today receiving platelets and blood, another person was there getting platelets and was saying her platelets were low at 45,000. I must say when mine reach 45,000 and stay, I will do a victory dance….I know they need to be higher but 45,000 would be a great start. My local oncologist and the nephrologist at the dialysis center both wanted to know when I would be going back to Houston to see Dr. Anderlini and I told them his office had called wanting to know how I am doing. I called back today and knew what they would say, come back to Houston. I am waiting for them to give me the appointment time. I told them I had been ”hiding” from them. They want to do another bone marrow biopsy and I am not sure what else. Not sure what they can do to jump start the stem cells but guess I will find out. Most of what they do for me is experimental anyway.