We went to M. D. Anderson yesterday with the hopes that my platelets were holding, they were not. They had dropped from 42,000 on Sunday to 26,000 today. I asked why they have been on such a roller coaster ride (I knew they would go up after I received platelets) what I wanted to know is why they drop so fast in such a short period of time. The P. A. said it is because my system is not making any. She said the stem cells are not working the way they should (we had been told it could take four months before they were doing their job). She said in a normal person’s system they realize when it is time to make more platelets and they take care of business but mine are like babies that are having to learn all over again what to do. I have been my stem cells biggest cheerleader and encouraging them to get to work but they seem to not be listening.

While at the dialysis clinic today, I asked for them to set up an appointment for the removal of the temporary/permanent catheter that is at my neck and having the permanent one put in my arm. They have it set up for April 26th at Hermann Clinic. This will have to be done before we can be released to come home. We are hoping to be home at the end of April…now if we can just get everyone down here to agree with us. It has been a long time since the 19th of January and it will be good to go home.